On May 9th, Baby Blue Sound Collective Played to a packed house at World Cafe Live in Philadelphia. For the first time, survivors with congenital heart disease (CHD) joined the BBSC, including
Mr. Jake Chatzky - assistant MC
Ms. Marla DeFusco, RN - vocalist
Mr. Seth Barmash - guitar.
AND much to our surprise, the audio engineer at World Cafe Live - Mr. Patrick Richardson, was a CHD survivor as well!
The audience was comprised of patients (some of the younger ones danced, and even appeared on stage), parents, friends, family, lots of staff from the Cardiac Center at Children's Hospital of Philadelphia, AND (since the American Association of Thoracic Surgery Meeting was in Philly) over 25 congenital heart surgeons from throughout the world.
The mix of people, all for a common goal, was awesome; the buzz was palpable!
BBSC is indebted to Hal Real and the staff at World Cafe Live for making this night possible, Mariano Mattei and Rich King of Philly Sound Studios for rehearsal space, Steve Fischer from Baby Blues BarBQ for his unbelievable support, and Mona Barmash from The Congenital Heart Information Network (www.tchin.org); without whom NONE of this would be possible!
A number of copies of our CD "Songs for Spencer" were sold at the venue, and can still be ordered on line at http://tchin.org/songs/
We also would like to thank Osler Circle (Philadelphia) and Woosah (St. Petersburg FL) for opening up the show, and joining us all on stage at the end!
We raised over $3000 dollars which will be divided between the 6 worthy charities below; please feel free to look at their websites, learn more and donate more!!!!!
Gil Wernovsky, MD for the BBSC.
Spencer's Fund, a financial assistance program that helps families with expenses incurred during extended or far from home clinic appointments and hospital stays, including groceries, meals, travel subsidies, lodging assistance, and utility payments to families in need. Our first CD: "Songs for Spencer" will be on sale at World Cafe Live, with additional proceeds contributing to Spencers Fund: Read more here: http://tchin.org/spencersfund/
Steve Catoe Memorial Fund of the Adult Congenital Heart Association (http://www.achaheart.org/get-involved/donate/steve-catoe-memorial-fund.aspx), supports ACHA’s legislative advocacy efforts and online support services for the growing number of adults with CHD. "Funky Heart Blog" is currently being written by the BBSD in Steve's honor: http://tricuspid.wordpress.com/ is well worth the read!!
Sisters by Heart http://heartsisters.blogspot.com/ a wonderful grass roots organization helping where help is always needed - providing care packages for new moms
Children's Heart Foundation http://www.childrensheartfoundation.org/ is the country’s leading organization solely committed to CHD research funding, CHF has funded over $4.1 million of CHD research since its inception, which included approximately $400,000 in 2010.
Heart and Mind Fund: a fund which supports the educational efforts of the NeuroCardiac Care Program at CHOP, including the annual family education day. http://www.chop.edu/service/cardiac-center/our-services/neuro-cardiac-care.html
The International Children’s Heart Foundation (ICHF) (http://www.babyheart.org/) is an international organization who's goal is to bring the skills, technology and knowledge to cure and care for children with congenital heart disease to developing countries. ICHF does this regardless of country of origin, race, religion or gender